Showing posts with label terminal illness. Show all posts
Showing posts with label terminal illness. Show all posts

Saturday, June 12, 2010

What Now?

As the rain beats unrelentingly outside my bedroom window, I recall just how incompatible the New England weather and I actually are.

I never thought I would be returning to Exeter New Hampshire. Now that I am here, I have no idea what I expected, in my planning and travels, my experience here to be. Now that I am here, however, I have no idea what to feel, to think, or even to be.

Following Ondrelique's graduation, the girls and I are staying on as house guests in Exeter, New Hampshire, . It was an unforeseen pitstop to say the least; and, being very unaccustomed to accepting hospitality of any kind, I find myself a rather poor house guest. It is odd how easily we all slip into modes of thought and behavior. For me, the objective has been the very frustrating cycle of survival-recovery-survival-recovery that basic human responses and sensations now seem...foreign. That kind of emotional and psychological detachment, I am told, is not unusual in "near death" situations. The problem is, I never felt as though death were particularly near to me: just the constant gnawing of my own perceived inadequacy.


(Chance, was it Dan Brown in your class...or his brother Chris?"

Drawing a complete blank: "Brown...Brown...I think so. I'd have to put a face to the name, though...?"

"Do you know who I'm talking about?"

"Uh...Brown...?" I mutter, still utterly lost.

"The Da Vinci Code?"

"...Oh. Yeah. Him." We were in the same general class, weren't we? Man, do I feel like a complete failure!)


Being here again has awakened sleeping ghosts--curled quietly in the dark corners of my hidden psyche--that I did not even realize existed. How odd it is that we human beings find phantasms of reality lurking behind every corner while the imaginary shadows of our most deeply-seeded insecurities take on the depths and dimensions of Unavoidable Truth. For me, the notion of myself as unforgivably lazy (rather than recovering from a severe medical setback)

Years before, when youthful confidence never allowed me to for a moment lose track of my own sense of self-worth, not once did I doubt my ability to take this world into the palm of my hand, then nonchalantly set the sucker on fire. Strength and determination lent to the illusion of invincibility which deluded me into believing that time, though of importance to everyone else, would bend to my will. Nothing would change unless I first gave it permission. Life existed to do my bidding. And if I didn't like it...well, then, life had to deal with my omnipotent wrath.

Now, as I struggle to relax and enjoy the respite so generously proffered, I wander the only semi-familiar pathways of Phillips Exeter Academy searching for traces of that fearless young girl. Where, exactly, is she...and why can I not find her (alongside those specters of my ever-growing dissatisfaction) within me? After twenty-plus years, did I truly expect to see her, some benign adumbration of my most secret longings, bopping past the Academy Building or Phillips Hall? Or, was I hoping to catch some whiff of her youthful essence--imagined or no--floating on some summer breeze as a reminder of all that I was, all that I once hoped to be?

Whatever it was that I had in mind, the fact remains that these last few years have caused a mental rift between the person I am and the person I now deem myself to be. In my mind, medical setbacks have come to represent abject failure. It was one thing, to be told that the end was unavoidable, leaving me no choice but to make peace with myself and my own failings. Now, this miraculous second (or third, maybe fourth) chance at life is...daunting. So much of my former passion for living seemed to have already passed on to the fabled Other Side: and, as such, I find myself left with no concept of who and what I now wish to be.

Do I even have a desire to write any longer? Does writing evoke in me any sense of pleasure or accomplishment any longer. Do I even care if I write Great American Novel at this stage of my life? At a time when everything I thought I knew or believed about myself and those around me has come into question?

I have no idea....

But here--now--is a great place to find out.




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Saturday, May 22, 2010

Recalling the Darkness

The searing waves crash,
Frothing, onto the soft pink sands that steam
Beneath their fiery onslaught.
Numbing, blinding this constant pummeling,
As hard, round stones sink
To press against the moist, vulnerable lining beneath,
Crushing the bruised swells of the shore.
Relentless is the tumultuous roiling
Which pries muscle from bone,
Draining the tender marrow
So that the gelid winds
Howl
Through the achingly hollowed caverns.
Oh, but that it were merciful,
Pulverizing sense and sensation
To a jellied nothingness,
Leaving the helpless shell--
Long emptied of the soft-bodied creature
Once sheltered within--
Free to float outward
Into non-existence!
Yet, no such succor does it offer,
This unending sea of pain.
On and on it flows,
Churning,
The scarlet waters hot enough to scald,
Its foam a bitter, poisonous acid,
Slowly eroding flesh, layer by layer,
Ever bubbling,
Ever burning,
Into infinity...
For an eternity.

Friday, March 12, 2010

Ultimately

Ultimately
The future--
Not the past--
Fades to black
Until all
That can be distinguished
Are the faintly-moving
Shadows
Of that
Which in a life
Was meant
To be.

Tuesday, March 2, 2010

Suffering Through the Moment

"Words have little meaning, their resonance in ideas."

A friend of mine wrote these words not long ago, when I was at a low point: enduring what seemed, at the time, unendurable pain. As I tried to put into perspective all that was happening to and around me, it was difficult not to ponder the significance of suffering in our world. Be it physical, mental, emotional, or psychological, the pain which can infiltrate mind, body, or soul is very real. And, at this very moment, as I concentrate on the carefully honed process of separating my mind--my Self--from the agony now (once again)wracking my body, I find myself praying that he was right: that if I am able to, as he advised, place myself apart from or outside of my discomfort, and "foster more curiosity than [I] ever thought [I]had," I might actually catch that glimmer of light or understanding, hope, Truth, or insight which will transform what seems to be needless physical suffering into some state, some place in which it is no longer some viciously, gnawing thing I have to endure...but rather that Being I can become, venturing into these sensations and then finding those spaces within myself that are not comprised of, consumed by the ravages of pain but defined by the very act of knowing that there is something to be learned, discovered by having explored the deeper implications of just recognizing how this has all defined me, in this moment, as this entity I am now but will never again be.

(Or maybe I'll just find out the Green-Eyed, Silver-Tongued Con Artist didn't know what the devil he was talking about!)